Therapy Thursdays

     Every Thursday is therapy day.  It has been for six years now.  Our youngest child, (baby doll) needs physical, occupational and speech therapy.  She has come along way in 6 years and when we started her therapies I would have never guessed we would be still be needing them.  At the time we didn't know what was going on but we knew enough to get help.  Today is not much different, we still don't have a diagnosis but what we do know is, she still needs help to achieve physical strength, fine and gross motor skills and speech.  Her bad days look much different than yours and mine.  A common cold or flu can trigger seizures and take any reserves she might have.  She still requires prompting to eat enough calories to grow and gain weight and although she comprehends language she can't speak clearly what she knows.  Her growth chart has stayed steady at below the 3rd percentile   She now weighs 30 lbs and we remain diligent for every ounce.  Hence her nickname, baby doll.
    On the other hand, her good days are very different than yours and mine. She is joyful always and hasn't really known a temper tantrum.  She has more empathy than most adults and she communicates very well without many words. In fact she uses sign and single syllables to form sentences.  But it's her eyes that she communicates her heart.  We are learning to communicate beyond words in knowing her and it is a purer form of speech.   She is quite amazing and lovely in the midst of all her hardships.  To be quite honest she is lovely in the midst of all of life.  You could say, she is as refreshing as the sunshine.    Those who get to participate in her daily life are constantly delighted by her joyful heart.  We are blessed.  She is blessed.  Many others are blessed.
    Thursday is therapy day.  Her day of therapy and mine.

Dare to live out what we live in.

Yes, our first entry!  Our family of 4 will be sharing stories of joy and hardship,  hope and struggle.  Our dare, as a family, to ~live out what we live in.  Soon I will be posting what the "living in" looks like, but today is about seeing. Seeing our blog have its first day!    Breathe, push publish and no turning back.........