Monday, May 20, 2013

Grace Soaked Soul

Rain brings thinking.  I'm melancholy by nature.  It's been awhile since I've written, no news is good news!

 We've come full circle of weaning Sophia off her seizure meds and she has done well. NO seizures to journal or neurologists to call!  We are thankful.  She has stayed healthy, which plays a huge roll in her little life.  We know this won't last, in this toxic world, but for now we are (again) thankful.  Respites are healing, as well as a time to allow our hearts to swell with remembering His Grace, for the next dip in the road.  All is Grace.

 Since the wean I've been able to have Sophia by my side and that has brought school home!  She has always amazed me but these weeks she has AMAZED me.  She is learning, not by "typical' standards but far greater!  She is missing 58 genes, but doesn't miss a beat!  No, not one single one.  So what if I prompt her to say her numbers or point the letter out for a reminder or use sign language.......she is doing it!  Progressing, rerouting her mind, to learn!  God's Grace.

 Her home bound teacher and I have discovered she works for "Goldfish"  She'll do just about anything to get a snack, another grace by God.  She is wanting to eat and a lot of them!!  You go, my girl!  Will she always need motivation to work?  YES! ( Hey, don't we all.......ours may be subtle and hidden BUT motivation is always the key.)  I love that it is food. God's grace (as I always wonder if she is getting enough calories.)  Grace.  

 The next bend in this road, is travel.  We have a couple of back to back events.  This is always hard on us, me especially. Remember, I'm the melancholy one... there will be bumps and bruises along the way and since mine are still healing the new bumps and bruises tend to hurt more quickly and deeply. I've been reminding myself to live in the moment, for that is all I have, and not to worry.  Grace, right.......I need His Grace! Grace to respond to insensitive remarks, grace to handle the misunderstandings, grace to face the challenges, whatever they may be.  It's all grace........and I need His!

 Sophia is missing 58 genes but she is NOT missing an ounce of His GRACE.  May I not miss it, either.
We've had days of rain, pouring rain. Sophia reminds me, like the rain these past few days......linger a while in God's presence, letting HIS Love soak your soul. Letting His Love Soak My Soul!

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